While undergoing chemotherapy I would find that my skin around my stoma would get sore and red. I have a stoma that is close to the skin level, almost just underneath it and therefore when I was experiencing higher output, I would find sometimes it would reach my skin, leaving it really sore. It was a vicious cycle though, if my skin was itching, I would need to change my pouch, sometimes up to 7 times a day, but that was further irritating my skin so was repeatedly irritating the skin – but it was so itchy!

At the same time, I had neuropathy and palmer planter (Hand-Foot) syndrome where my hands became painful and sore plus very sensitive to cold. This meant I had to make a few adjustments to my routine.

The best thing I discovered was Vitamin E barrier wipes – these were and still are amazing! They really help to soothe the skin around my stoma from the irritation.

Originally, I had been using an adhesive remover spray, but I was finding both the bottle too cold for my hands but also the spray cold when it hit my skin. Instead, I switched to wipes and warmed them a little beforehand, so it was easier to use.

When my skin was really sore and itchy, I also found it was a relief to take the bag off, pop a disposable bag in the waistband of my trousers just in case and just let the air get around my stoma. If I knew my stoma wasn’t going to be active for a little bit, I’d go sit on the sofa and just let it air.

Keeping my routine simple too, I would sometimes use the disposable wipes in cool water to relieve the skin around the stoma – it is so refreshing and cooling. However, with sore hands I would also have to be conscious of them. I would keep them moisturized and cared for but sometimes if I needed to keep them out of water, I would just use a pair of plastic gloves during my stoma care routine to protect them. You have to do what is right for you.

One thing I wish I did more was question my stoma care nurse when I had problems with sore skin. In retrospect a 2-piece bag might have been a good option, but I didn’t know at the time. So don’t be afraid to ask and speak out if something isn’t quite right for you.

Amy
@mybowelcancerjourney